Information for Researchers/Collaborators
1. What is the Mind Body Resiliency Data Repository?
The purpose of the Mind Body Resiliency Data Repository is to provide a centralized data warehouse that will make the research and clinical data collected from participants in clinical resiliency programs. Surveys are optional and collected electronically via REDCap; participants may choose to voluntarily to answer the baseline survey(T0) and/or the post-program survey (T1).
Typically, participants in these programs are individuals dealing with an ongoing stressor and/or chronic illness. Participants include adult and young adult cancer survivors, relatives of children with learning and attentional disabilities, and women with HIV. Data collected may relate to, or reflect, participant quality of life, such as data regarding engagement in health behaviors (e.g., healthy eating, physical activity, sleep quality), resiliency, social support, emotional distress, positive affect, and mindfulness.
The data repository is a resource to standardize and streamline the collection, management and analysis of this data from these clinical and research projects, thus facilitating the secondary analysis of data to answer new scientific questions.
2. Data Requests
You may request our request form for a comprehensive list of current and former measures in our survey battery. Please choose and download the appropriate form for (a) general Mind Body Resiliency Repository data requests, or (b) Cancer Survivorship repository data requests:
For general questions about data requests, please email Autumn Rasmussen (email@example.com).
To submit a proposal, please email Daniel Hall, PhD (firstname.lastname@example.org).
3. Background Literature Related to the Mind Body Resiliency Data Repository
4. Mind Body Resiliency Survey Battery
These voluntary surveys take approximately 30 minutes to complete and are administred to participants in our Mind Body Resiliency Groups at program start and end. Below is a list of our current survey battery, including dates of collection. Questions about any instruments listed below, or any instruments previously used in our repository, can be routed to Daniel Hall, PhD (email@example.com)
|Instrument||Construct||Validation Paper||Dates of Collection|
|Demographics||Patient Demographics||n/a||9/20/16 – Present|
|Current Experiences Scale (CES)||Resiliency||Park, et al. (2021)||9/20/16 – Present|
|1-11 Distress Scale||Emotional Distress||n/a||9/20/16 – Present|
|Measure of Current Status (MOCS)||Stress Coping||Carver, C. S. (2006)||9/20/16 – Present|
|PANAS (Positive Affect)||Positive Emotions||Thompson, E.R. (2007)||9/20/16 – Present|
|Penn State Worry Questionnaire (PSWQ)||Worry||Meyer, et al. (1990)||9/20/16 – Present|
|International Physical Activity Questionnaire (IPAQ)||Physical Activity||Craig, et al. (2003)||9/20/16 – Present|
|Insomnia Severity Index (ISI)||Recuperative Sleep||Kraepelein, et al. (2021)||8/30/22 – Present|
|Pittsburg Sleep Quality Index (PSQI)||Recuperative Sleep||Buysse, et al. (1989)||9/20/16 – Present|
|PSS-10||Perceived Stress||Cohen & Williamson (1988)||9/20/16 – Present|
|CAMS-R||Mindfulness||Feldman, et al. (2007)||9/20/16 – Present|
|PHQ-4||Depression and Anxiety||Lowe, et al. (2010)||9/20/16 – Present|
|Fatigue Analogue Scale||Fatigue||n/a||9/20/16 – Present|
|Cigna Healthy Eating||Mindful Eating||n/a||9/20/16 – Present|
|RR Adherence||Relaxation Practice Frequency||n/a||7/21/21 – Present|
|MOS Social Support (Emotional Support Scale)||Social Support||Sherbourne & Stewart (1991)||9/20/16 – Present|
|TFEQ Emotional Eating Subscale||Healthy Eating||Stunkard & Messick (1985)||7/21/21 – Present|
|RIA Single Item||n/a||7/21/21 – Present|
|Health Uncertainty||Health Uncertainty||n/a||9/20/16 – Present|
|Flourishing Measure||Flourishing||Węziak-Białowolska, et al. (2019)||7/21/21 – Present|
|WHO-5 Wellbeing Index||Wellbeing||Topp, et al. (2015)||7/21/21 – Present|
|Appreciation Items||Apprecation||n/a||7/21/21 – Present|
|Religiosity and Spirituality Items||Religiosity and Spirituality||n/a||7/21/21 – Present|
|UCLA Loneliness Scale||Loneliness||Russell, et al. (1980)||9/20/16 – Present|
|Smoking Question||Tobacco Use||n/a||7/21/21 – Present|
|Expectancy Questionnaire||Expected Outcomes||Devilly & Borkovec (2000)||9/20/16 – Present|