Information for Researchers/Collaborators

1. What is the Mind Body Resiliency Data Repository?

The purpose of the Mind Body Resiliency Data Repository is to provide a centralized data warehouse that will make the research and clinical data collected from participants in clinical resiliency programs. Surveys are optional and collected electronically via REDCap; participants may choose to voluntarily to answer the baseline survey(T0) and/or the post-program survey (T1).

Typically, participants in these programs are individuals dealing with an ongoing stressor and/or chronic illness. Participants include adult and young adult cancer survivors, relatives of children with learning and attentional disabilities, and women with HIV. Data collected may relate to, or reflect, participant quality of life, such as data regarding engagement in health behaviors (e.g., healthy eating, physical activity, sleep quality), resiliency, social support, emotional distress, positive affect, and mindfulness. 

The data repository is a resource to standardize and streamline the collection, management and analysis of this data from these clinical and research projects, thus facilitating the secondary analysis of data to answer new scientific questions. 

2. Data Requests

You may request our request form for a comprehensive list of current and former measures in our survey battery.  Please choose and download the appropriate form for (a) general Mind Body Resiliency Repository data requests, or (b) Cancer Survivorship repository data requests:

For general questions about data requests, please email Autumn Rasmussen (

To submit a proposal, please email Daniel Hall, PhD (

3. Background Literature Related to the Mind Body Resiliency Data Repository

4. Mind Body Resiliency Survey Battery

These voluntary surveys take approximately 30 minutes to complete and are administred to participants in our Mind Body Resiliency Groups at program start and end. Below is a list of our current survey battery, including dates of collection. Questions about any instruments listed below, or any instruments previously used in our repository, can be routed to Daniel Hall, PhD (

Instrument ConstructValidation PaperDates of Collection
Demographics Patient Demographics n/a9/20/16 – Present
Current Experiences Scale (CES) ResiliencyPark, et al. (2021) 9/20/16 – Present
1-11 Distress ScaleEmotional Distress n/a9/20/16 – Present
Measure of Current Status (MOCS)Stress Coping Carver, C. S. (2006)9/20/16 – Present
PANAS (Positive Affect) Positive EmotionsThompson, E.R. (2007)9/20/16 – Present
Penn State Worry Questionnaire (PSWQ)Worry Meyer, et al. (1990)9/20/16 – Present
International Physical Activity Questionnaire (IPAQ)Physical Activity Craig, et al. (2003)9/20/16 – Present
Insomnia Severity Index (ISI)Recuperative Sleep Kraepelein, et al. (2021)8/30/22 – Present
Pittsburg Sleep Quality Index (PSQI)Recuperative Sleep Buysse, et al. (1989)9/20/16 – Present
PSS-10Perceived Stress Cohen & Williamson (1988)9/20/16 – Present
CAMS-RMindfulnessFeldman, et al. (2007)9/20/16 – Present
PHQ-4Depression and Anxiety Lowe, et al. (2010)9/20/16 – Present
Fatigue Analogue Scale Fatigue n/a9/20/16 – Present
Cigna Healthy Eating Mindful Eating n/a9/20/16 – Present
RR Adherence Relaxation Practice Frequency n/a7/21/21 – Present
MOS Social Support (Emotional Support Scale) Social Support Sherbourne & Stewart (1991)9/20/16 – Present
TFEQ Emotional Eating Subscale Healthy Eating Stunkard & Messick (1985)7/21/21 – Present
RIA Single Itemn/a7/21/21 – Present
Health Uncertainty Health Uncertainty n/a9/20/16 – Present
Flourishing Measure Flourishing Węziak-Białowolska, et al. (2019)7/21/21 – Present
WHO-5 Wellbeing Index Wellbeing Topp, et al. (2015)7/21/21 – Present
Appreciation Items Apprecation n/a7/21/21 – Present
Religiosity and Spirituality Items Religiosity and Spirituality n/a7/21/21 – Present
UCLA Loneliness Scale Loneliness Russell, et al. (1980) 9/20/16 – Present
Smoking Question Tobacco Use n/a7/21/21 – Present
Expectancy Questionnaire Expected Outcomes Devilly & Borkovec (2000)9/20/16 – Present
Last updated 9.20.22